3/13/11
Oliver’s had a really hard day today- fussy, tired, in pain, and won’t sleep. He had a fever of about 100.5 when I checked him this afternoon, and he’s been on ibuprofen and Tylenol all day. The fever has gone down a little but is still there. We haven’t seen any seizure activity yet, but I’m still nervous. Either ibuprofen or Tylenol should lower the fever, and both together aren’t doing enough good. I went to the pharmacy this evening to fill his Diastat prescription, just in case we need it tonight. We’re supposed to use it in case of a seizure that lasts more than 5 minutes. We’ve never had to use it before, so tonight might be the first time. Lately, I have been reading some stories written by parents of children with TS, and they scare me. So many of the stories talk about huge, debilitating seizures that caused irreversible loss of skills. When I read stories like that, I can’t help but wonder if tonight will be some sort of turning point in Oliver’s life. It probably won’t, but you never know. We already have 2 strikes against us. Strike one: fever, especially since it’s not controlled by medicine. Strike 2: It’s Sunday night. These things always happen on Sunday nights for whatever reason. I want to have the Diastat on hand so I’m prepared in case something happens. If something does happen, I don’t want to have to look back and wonder if I could’ve prevented it.
On the plus side, he’s not throwing up- no problems with pill dosing tonight! (knock on wood)
I guess we’ll see what happens.
