Oliver is my son, and he has a disease called tuberous sclerosis, or TS. TS is a genetic disease that causes tumors to grow throughout the body. The tumors that are causing Oliver problems are located in his brain. They are not cancerous, but they cause seizures and hydrocephalus. This blog is about my life with Oliver and my husband Jadey.
Thursday, April 7, 2011
A Clarification
OK, so after hearing some feedback about my last post, I am realizing that I need to clarify a couple of things. First of all, when I said that Jadey was shaking Oliver, I should have said that Jadey was trembling with frustration while holding Oliver. He most definitely wasn't shaking Oliver in the "don't shake a baby" sense of the word. Oliver was not being hurt in any way whatsoever by the movement. Second of all, before all this happened, Jadey had been trying to tell me that he shouldn't be a part of the pill dosing since it caused him to get so stressed out. I really wanted him to help me, so I pushed for him to still participate in the dosing. Jadey knows when he is getting too frustrated to be of much help; he knows when to leave the room. I think everybody gets a little stressed sometimes, so no one should blame Jadey for feeling that way! He's a really good dad and is great with Oliver. I apologize that this didn't come across more in my post yesterday- I didn't have as much chance to go over it as I would have liked.
Labels:
family,
tuberous sclerosis