8/3/11
Oliver had a seizure on Tuesday night, a day and a half ago, which was the first episode we have been sure of since December. I was home alone with him- it was Jadey’s night off, and he was at a movie. Ollie was tired since he hadn’t had much for naps that day, so I gave him his melatonin early and put him in bed at 8:00, 30 minutes early. He was pretty quiet, so I figured he had fallen asleep. I went up to check on him at 8:15, and he was awake and playing with his music toys. He saw me before I could hide and started crying, so I got him and rocked him for awhile. Around 8:20, he was drifting off; his eyes were shut, and I was about to put him in his crib for the night. Then, all of a sudden, his eyes opened really wide and his body tensed up. He started turning his head really slowly, back and forth, looking around, with his eyes still really wide open and his body stiff. He looked at me, almost as if he didn’t know who I was, and then a big grin lit up his face. I tried to tickle him, and he responded a little, but not as much as he usually would. I’m not sure exactly when the episode ended, but 5-10 minutes later he was pushing his music toys in his crib like usual. By 8:33, he was asleep. I wasn’t sure in the moment if it was a seizure or not, but as I thought about it over the next few minutes, the more sure I was. It was the exact same way his spasms would start back in September and October. When he was diagnosed, his neurologist said that his spasms were a strange meld of IS and complex partial seizures; the two kind of fed off each other. Back then, we could tell he was going to have his spasms because his eyes would open really wide and his body would tense up; he would also do the weird turning his head thing. Then, he would start to spasm. This time, there weren’t any strange spasms or jerks, so it looked to me like just the complex partial seizure. I emailed Oliver’s neurologist that night, and the next morning she emailed me back. She thought it was a complex partial seizure as well, and she said we should increase his medication. We started increasing his meds last night. Hopefully it will work and we won’t see any more of this for a long, long time. He had a couple of questionable episodes yesterday, pauses in the middle of what he was doing. I’m really looking forward to the EEG in 3 weeks; hopefully we will know exactly what is going on. It’s been sad going from 7 months of relative seizure freedom to being back in the middle of it.
